Help & Resource Center The Marfan Foundation

Record last updated 2017/07/06 Comment on this info .Update this info

Contact Information

The Marfan Foundation
Contact: Janice Petrella Lynch, MSN, RN, Director of Help & Resource Center
Email Address: staff@marfan.org
Phone: 516-883-8712

22 Manhasset Avenue Port Washington, NY 11050
Area Served: Out of State

Map Location Help & Resource Center

Narrative

Marfan syndrome is a genetic disorder that affects the body’s connective tissue. Connective tissue helps to hold the body’s cells, organs, and tissues together and also helps to control how the body grows and develops.

There are also several disorders related to Marfan syndrome that cause people to struggle with the same or similar physical problems, and anyone affected by these disorders needs an early and accurate diagnosis.

Service Types

  • Disability Awareness
  • Family Support

Program Type

  • Information/Referral

Populations Served

  • Ehlers-Danlos Syndrome
  • Genetic Disorders
  • Rare disorders/low incidence

Ages Served

Additional Information

  • Fees: Free Service