Help & Resource Center The Marfan Foundation
Contact InformationThe Marfan Foundation
Contact: Janice Petrella Lynch, MSN, RN, Director of Help & Resource Center
Email Address: firstname.lastname@example.org
View Help & Resource Center Website
22 Manhasset Avenue Port Washington, NY 11050
Area Served: Out of State
Map Location Help & Resource Center
Marfan syndrome is a genetic disorder that affects the body’s connective tissue. Connective tissue helps to hold the body’s cells, organs, and tissues together and also helps to control how the body grows and develops.
There are also several disorders related to Marfan syndrome that cause people to struggle with the same or similar physical problems, and anyone affected by these disorders needs an early and accurate diagnosis.
- Disability Awareness
- Family Support
- Ehlers-Danlos Syndrome
- Genetic Disorders
- Rare disorders/low incidence
- Fees: Free Service