Hermansky-Pudlak Syndrome Network Services Hermansky-Pudlak Syndrome Network
Record last updated 2021/10/04 Comment on this info .Update this info
Contact Information
Hermansky-Pudlak Syndrome NetworkContact: Heather Kirkwood, Vice President and Director of Outreach
Email Address: hkirkwood@hpsnetwork.org
Phone: 516-922-4022
Alternate Phone: 800-789-9477
Fax: 516-624-0640
View Hermansky-Pudlak Syndrome Network Services Website
One South Road Oyster Bay, NY 11771
Area Served: Out of State
Map Location Hermansky-Pudlak Syndrome Network Services
Narrative
A volunteer self-help, not-for-profit support group for persons and families dealing with Hermansky-Pudlak Syndrome (HPS) and related disorders, such as Chediak Higashi Syndrome.
Service Types
- Family Support
Program Type
- Advocacy
- Support Groups
Populations Served
- Rare disorders/low incidence
Ages Served
- Birth to 3
- 3 - 4
- 5 - 8
- 9 - 13
- 14 - 18
- 19 - 22
- 23 – 59
- 60 +
Languages Spoken
- Spanish
Additional Information
- Fees: Free Service
