Hermansky-Pudlak Syndrome Network Services Hermansky-Pudlak Syndrome Network

Hermansky-Pudlak Syndrome Network Services Hermansky-Pudlak Syndrome Network

Record last updated 2021/10/04 Comment on this info .Update this info

Contact Information

Hermansky-Pudlak Syndrome Network
Contact: Heather Kirkwood, Vice President and Director of Outreach
Email Address: hkirkwood@hpsnetwork.org
Phone: 516-922-4022
Alternate Phone: 800-789-9477
Fax: 516-624-0640

One South Road Oyster Bay, NY 11771
Area Served: Out of State

Map Location Hermansky-Pudlak Syndrome Network Services

Narrative

A volunteer self-help, not-for-profit support group for persons and families dealing with Hermansky-Pudlak Syndrome (HPS) and related disorders, such as Chediak Higashi Syndrome.

Service Types

  • Family Support

Program Type

  • Advocacy
  • Support Groups

Populations Served

  • Rare disorders/low incidence

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Languages Spoken

  • Spanish

Additional Information

  • Fees: Free Service