Hermansky-Pudlak Syndrome Network

Record last updated 2017/03/15 Comment on this info .Update this info

Contact Information

Hermansky-Pudlak Syndrome Network
Contact: Heather Kirkwood, Vice President and Director of Outreach
Email Address: info@hpsnetwork.org
Phone: (516) 922-4022
Alternate Phone: (800) 789-9477
Fax: (516) 624-0640

One South Road Oyster Bay, NY 11771
Area Served: Out of State

Map Location Hermansky-Pudlak Syndrome Network

Narrative

A volunteer self-help, not-for-profit support group for persons and families dealing with Hermansky-Pudlak Syndrome (HPS) and related disorders, such as Chediak Higashi Syndrome.

Program Type

  • Advocacy
  • Information/Referral
  • Support Groups

Populations Served

  • Digestive Disorders

Ages Served

  • 14 - 18
  • 19 – 22
  • 23 – 59
  • 3 - 4
  • 5 - 8
  • 60 +
  • 9 - 13
  • Birth to 3

Languages Spoken

  • Spanish

Additional Information

  • Fees: Free Service