Hermansky-Pudlak Syndrome Network

Record last updated 2019/10/07 Comment on this info .Update this info

Contact Information

Hermansky-Pudlak Syndrome Network
Contact: Heather Kirkwood, Vice President and Director of Outreach
Email Address: hkirkwood@hpsnetwork.org
Phone: 516-922-4022
Alternate Phone: 800-789-9477
Fax: 516-624-0640

One South Road Oyster Bay, NY 11771
Area Served: Out of State

Map Location Hermansky-Pudlak Syndrome Network

Narrative

A volunteer self-help, not-for-profit support group for persons and families dealing with Hermansky-Pudlak Syndrome (HPS) and related disorders, such as Chediak Higashi Syndrome.

Hermansky-Pudlak Syndrome Network Birth to 3, 3 - 4, 5 - 8, 9 - 13, 14 - 18, 19 – 22, 23 – 59, 60 + Oyster Bay Heather Kirkwood hkirkwood@hpsnetwork.org 516-624-0640 516-922-4022 800-789-9477 18794 Hermansky-Pudlak Syndrome Network Advocacy, Information/Referral, Support Groups 7) Out of State Family Support One South Road Vice President and Director of Outreach http://www.hpsnetwork.org 11771 Free Service Rare disorders/low incidence Local Area Vice President and Director of Outreach Spanish NATIONAL

Service Types

  • Family Support

Program Type

  • Advocacy
  • Information/Referral
  • Support Groups

Populations Served

  • Rare disorders/low incidence

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Languages Spoken

  • Spanish

Additional Information

  • Fees: Free Service