Record last updated 2024/12/17 Comment on this info .Update this info
Contact Information
Joubert Syndrome & Related Disorders Foundation (JSRDF)Information and Support
Email Address: mfields@jsrdf.org
View Information and Support Website
9 Dorenfeld Court Petaluma, CA 94952
Area Served: Out of State
Map Location Information and Support
Narrative
The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list, newsletter, and a biennial conference. The Joubert Syndrome & Related Disorders Foundation plays an important role in educating doctors and their support teams as well as increasing public awareness.
Service Types
- Disability Awareness
- Family Support
Program Type
- Advocacy
- Support Groups
Populations Served
- Developmental Disability
Ages Served
- Birth to 3
- 3 - 4
- 5 - 8
- 9 - 13
- 14 - 18
- 19 - 22
- 23 – 59
- 60 +
Additional Information
- Fees: Free Service
