Information and Support Joubert Syndrome & Related Disorders Foundation (JSRDF)

Record last updated 2022/09/12 Comment on this info .Update this info

Narrative

The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list, newsletter, and a biennial conference. The Joubert Syndrome & Related Disorders Foundation plays an important role in educating physicians and their support teams as well as increasing public awareness.

Service Types

• Family Support

Program Type

• Advocacy
• Support Groups

Populations Served

• Rare disorders/low incidence

Ages Served

• Birth to 3
• 3 - 4
• 5 - 8
• 9 - 13
• 14 - 18
• 19 - 22
• 23 – 59
• 60 +

Additional Information

• Fees: Free Service