Joubert Syndrome & Related Disorders Foundation Joubert Syndrome & Related Disorders Foundation (JSRDF)

Record last updated 2019/12/04 Comment on this info .Update this info

Contact Information

Joubert Syndrome & Related Disorders Foundation (JSRDF)
Contact: Jenni Swenson, President
Email Address: info@jsrdf.org

9 Dorenfeld Ct. Petaluma, CA 94952
Area Served: Out of State

Map Location Joubert Syndrome & Related Disorders Foundation

Narrative

International network of parents who share knowledge, experience, and emotional support. Offers a networking list, newsletter, and a biennial conference.

Service Types

  • Family Support

Program Type

  • Advocacy
  • Information/Referral
  • Support Groups

Populations Served

  • Rare disorders/low incidence

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Additional Information

  • Fees: Free Service