Record last updated 2026/01/28 Comment on this info .Update this info

Narrative

Site includes links to many agencies and a network of families worldwide, including a community posting forum.

Mowat-Wilson syndrome is a genetic condition that affects many parts of the body. Major signs of this disorder often include:

• distinctive facial features
• intellectual disability (ID)
• delayed development
• an intestinal disorder called Hirschsprung disease
• other birth defects

Service Types

• Family Support

Program Type

• Advocacy
• Support Groups

Populations Served

• Developmental Disability
• Intellectual Disabilities
• Mowat-Wilson Syndrome

Ages Served

• Birth to 3
• 3 - 4
• 5 - 8
• 9 - 13
• 14 - 18
• 19 - 22

Languages Spoken

• Spanish
• Vietnamese

Additional Information

• Fees: Free Service