Record last updated 2025/02/12 Comment on this info .Update this info
Contact Information
National Foundation for Ectodermal DysplasiasContact: Kelley Atchison, Director of Family and Community Programs
Email Address: Kelley@nfed.org
Phone: 618-566-2020
View Information and Support Website
6 Executive Drive Suite 2 Fairview Heights, IL 62208
Area Served: Out of State
Map Location Information and Support
Narrative
The NFED empowers and connects individuals and families affected by ectodermal dysplasias through education, support, and research. We provide regional and national resources, including educational publications and newsletters, to help families navigate their journey. Our financial assistance program helps eligible families access essential medical and dental care. Additionally, we support research efforts to advance treatments and improve the quality of life for those living with ectodermal dysplasias.
Service Types
- Family Support
Program Type
- Advocacy
- Financial Assistance
Populations Served
- Ectodermal Dysplasias
Ages Served
- Birth to 3
- 3 - 4
- 5 - 8
- 9 - 13
- 14 - 18
- 19 - 22
- 23 – 59
- 60 +
Additional Information
- Fees: Free Service
