National MPS Society

Record last updated 2018/09/24 Comment on this info .Update this info

Contact Information

National MPS Society
Contact: Coreen Gray, Family Support Lead
Email Address: coreen@mpssociety.org
Phone: 919 806-0101
Fax: 919 806-2055

4220 Apex Highway ste 140 Durham, NC 27709-4686
Area Served: Out of State

Map Location National MPS Society

Narrative

The National MPS Society is a non-profit organization whose mission is to find cures for MPS and related diseases, and to provide hope and support for affected individuals and their families through research, advocacy and awareness of these devastating diseases. Mucopolysaccharidoses (MPS) are genetic diseases that cause cells to perform improperly, resulting in progressive damage throughout the body. The diseases are rarely apparent at birth, but the signs and symptoms develop with age as more cells become damaged. As the damaged cells accumulate in the body, the body shuts down, eventually leading to a premature death. At this time there is no cure.

Service Types

  • Disability Awareness
  • Financial Assistance

Program Type

  • Advocacy
  • Assistive Technology and Equipment
  • Communication
  • Counseling
  • Information/Referral
  • Support Groups

Populations Served

  • Other See Narrative

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Additional Information

  • Fees: Personal Funds