Record last updated 2022/12/06 Comment on this info .Update this info
Contact Information
National Tay Sachs & Allied Diseases Association IncorporatedContact: Diana Pangonis, Director of Family Services and Communications
Email Address: info@ntsad.org
Phone: 617-277-4463
Alternate Phone: 800-906-8723
Fax: 617-277-0134
View National Tay Sachs & Allied Diseases Association Website
2001 Beacon Street Suite 204 Boston, MA 02135-7772
Area Served: Boston
Map Location National Tay Sachs & Allied Diseases Association
Narrative
Non-profit, voluntary health organization dedicated to prevention and treatment of Tay-Sachs, Canavan & 40 other genetic disorders, many involving the central nervous system. Carrier screenings, public & professional education program, research, national parent support network, resource lists, physician referral, & advocacy. Referrals accepted from Ob-Gyns & Genetic counselors, pediatricians & pediatric neurologists, other specialists, nurses, midwives, and self-referral. Membership encouraged for parents, grandparents and extended family members. Also provide services to adults with chronic forms of these neurodegenerative genetic diseases, their families and caregivers. Printed materials are available in Spanish, Russian, and Hebrew.
Service Types
- Adult Education
- Disability Awareness
- Socialization Activities
Program Type
- Assistive Technology and Equipment
- Counseling
- Support Groups
Populations Served
- Tay-Sachs
Ages Served
- Birth to 3
- 3 - 4
- 5 - 8
- 9 - 13
- 14 - 18
- 19 - 22
- 23 – 59
- 60 +
Accessibility Features
- Accessible Public Transportation
- Accessible Restrooms
- Elevators
- Near Public Transportation
- Wheelchair Ramps
Additional Information
- Accredited By: n/a
- Fees: Free Service, Personal Funds
- Licensed By: n/a
