National Tay Sachs & Allied Diseases Association National Tay Sachs & Allied Diseases Association Incorporated

Record last updated 2017/09/14 Comment on this info .Update this info

Contact Information

National Tay Sachs & Allied Diseases Association Incorporated
Contact: Diana Pangonis, Director of Family Services and Communications
Email Address: diana@ntsad.org
Phone: 617-277-4463
Alternate Phone: 800-906-8723
Fax: 617-277-0134

2001 Beacon Street Suite 204 Boston, MA 02135-7772
Area Served: Boston

Map Location National Tay Sachs & Allied Diseases Association

Narrative

Non-profit, voluntary health organization dedicated to prevention and treatment of Tay-Sachs, Canavan & 40 other genetic disorders, many involving the central nervous system. Carrier screenings, public & professional education program, research, national parent support network, resource lists, physician referral, & advocacy. Referrals accepted from Ob-Gyns & Genetic counselors, pediatricians & pediatric neurologists, other specialists, nurses, midwives, and self-referral. Membership encouraged for parents, grandparents and extended family members. Also provide services to adults with chronic forms of these neurodegenerative genetic diseases, their families and caregivers. Printed materials are available in Spanish, Russian, and Hebrew.

Service Types

  • Adult Education
  • Disability Awareness
  • Socialization Activities

Program Type

  • Assistive Technology and Equipment
  • Counseling
  • Information/Referral
  • Support Groups

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Accessibility Features

  • Accessible Public Transportation
  • Accessible Restrooms
  • Elevators
  • Near Public Transportation
  • Wheelchair Ramps

Additional Information

  • Accredited By: n/a
  • Fees: Personal Funds
  • Licensed By: n/a