Office of Rare Diseases Research

Record last updated 2021/06/04 Comment on this info .Update this info

Contact Information

Genetic and Rare Diseases Information Center
Office of Rare Diseases Research
Email Address: ordr@nih.gov
Phone: 301-402-4336
Alternate Phone: 888-205-2311
Fax: 301-480-9655

National Institute of Health, 6701 Democracy Boulevard, Suite 1001, MSC 4874 Bethesda, MD 20892
Area Served: Out of State

Map Location Office of Rare Diseases Research

Narrative

Online repository for information about rare medical or genetic conditions, research and medical trials, patient advocacy and travel groups, and reports to federal agencies.

Genetic and Rare Diseases Information Center Birth to 3, 3 - 4, 5 - 8, 9 - 13, 14 - 18, 19 – 22, 23 – 59, 60 + Bethesda ordr@nih.gov 301-480-9655 301-402-4336 888-205-2311 18977 Office of Rare Diseases Research Advocacy, Information/Referral 7) Out of State Family Support National Institute of Health, 6701 Democracy Boulevard, Suite 1001, MSC 4874 Support Staff http://www.rarediseases.info.nih.gov 20892 Free Service Rare Disorders/low incidence, Genetic Disorders Local Area Support Staff Spanish NATIONAL

Service Types

  • Family Support

Program Type

  • Advocacy

Populations Served

  • Genetic Disorders

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Languages Spoken

  • Spanish

Additional Information

  • Fees: Free Service