Record last updated 2024/07/29 Comment on this info .Update this info
Contact Information
Genetic and Rare Diseases Information CenterOffice of Rare Diseases Research
Email Address: ordr@nih.gov
Phone: 301-402-4336
Alternate Phone: 888-205-2311
Fax: 301-480-9655
View Office of Rare Diseases Research Website
National Institute of Health 6701 Democracy Boulevard Suite 1001 MSC 4874 Bethesda, MD 20892
Area Served: Out of State
Map Location Office of Rare Diseases Research
Narrative
Online repository for information about rare medical or genetic conditions, research and medical trials, patient advocacy and travel groups, and reports to federal agencies.
Service Types
- Family Support
Program Type
- Advocacy
Populations Served
- Genetic Disorders
Ages Served
- Birth to 3
- 3 - 4
- 5 - 8
- 9 - 13
- 14 - 18
- 19 - 22
- 23 – 59
- 60 +
Languages Spoken
- Spanish
Additional Information
- Fees: Free Service
