Office of Rare Diseases Research Genetic and Rare Diseases Information Center

Record last updated 2018/04/27 Comment on this info .Update this info

Contact Information

Genetic and Rare Diseases Information Center
Office of Rare Diseases Research
Email Address: ordr@nih.gov
Phone: (301) 402-4336
Fax: (301) 480-9655

National Institute of Health, 6701 Democracy Boulevard, Suite 1001, MSC 4874 Bethesda, MD 20892
Area Served: Out of State

Map Location Office of Rare Diseases Research

Narrative

Online repository for information about rare medical or genetic conditions, research and medical trials, patient advocacy and travel groups, and reports to federal agencies.

Program Type

  • Advocacy
  • Information/Referral

Populations Served

  • Genetic Disorders
  • Rare disorders/low incidence

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Languages Spoken

  • Spanish

Additional Information

  • Fees: Free Service