Dedicated to improve the level of understanding, diagnosis and treatment of Tarlov cysts. Resources for patients and families. Tarlov Cyst Disease Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Knoxville Sandy Roof sandyproof@tarlovcystfoundation.org 865-577-4945 19070 Information and Support… Continue Reading Information and Support [...]
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Information and Support
Dedicated to finding a cure for Tuberous Sclerosis while improving the lives of those affected; offers information and resources with online support and in-person support groups. Tuberous Sclerosis Alliance Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Silver Spring… Continue Reading Information and Support [...]
Information and Support
Trusted Parents is an all inclusive 501(c)3 non profit organization. We focus on the wellbeing of parents and caregivers of special need children. Our mission is to empower a special community of parents and caregivers with support, services, awareness, and help that will help enhance their lives and the lifestyle of their loved ones… Continue Reading Information and Support [...]
Information and Support
Information and support for patients diagnosed with acoustic neuroma and other benign tumors of the cranial nerves. Acoustic Neuroma Association Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Cumming Melissa Baumbick info@anausa.org 770-205-0239 770-205-8211 877-200-8211 4396 Information and Support… Continue Reading Information and Support [...]
Information and Support
Provides educational and management information about diabetes. We have referrals and information about programs for people with diabetes. American Diabetes Association Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Alexandria askada@diabetes.org 800-342-2383 22463 Information and Support Advocacy, Information/Referral,… Continue Reading Information and Support [...]
Information and Support
Helps and supports parents of children with mosaic Down syndrome in meeting new people and research. The website includes education, support, and Family Connect, an online parent-to-parent program. Annual meet ups at their R&R Research and Retreat Weekends. International Mosaic Down Syndrome Association Birth to 3, 3 – 4, 5 – 8, 9 –… Continue Reading Information and Support [...]
Information and Support
Provide services to New England, including Rhode Island and New Hampshire and surrounding communities. Sponsors programs of education, referral and support for people with lupus, their families, doctors, and the general public. Provide support groups in the New England area. Lupus Foundation of New England 9 – 13, 14 – 18, 19 – 22,… Continue Reading Information and Support [...]
Information and Support
Info & referral Childcare & youth enrichment Family support Wheelchair Ramps, Accessible Parking, Accessible Restrooms, Near Public Transportation Monomoy Community Services Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Chatham info@monomoy.org 508-945-3737 508-945-1501 508-945-1117 2182 Information and Support… Continue Reading Information and Support [...]
Information and Support
Raises awareness, allowing more children to be properly diagnosed. Supports parents who have children with fragile X: publications, listserv via email. Subscribe to email updates (free) at fraxa.org FRAXA Research Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 +… Continue Reading Information and Support [...]
Information and Support
Advances awareness and treatment of Angelman Syndrome through education, information and support for individuals with Angelman Syndrome, their families and concerned parties. Provides resources specific to the region. They also host fundraising events allowing families to connect with each other. Alternate email: shibvonsargent@gmail.com Angelman Syndrome Foundation (ASF) Birth to 3, 3 – 4, 5… Continue Reading Information and Support [...]
