Provides information and support to parents, patients, family members, caregivers, friends and professionals dealing with Krabbe Disease and related leukodystrophies. Hunter’s Hope Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18 Orchard Park Melissa Jablonski info@huntershope.org 716-667-1200 18803 Information and Referral (I&R) and Services Information/Referral, Support Groups… Continue Reading Information and Referral (I&R) and Services [...]
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Information and Referral (I&R) Services
Our Information and Referral specialists are often a consumer’s first point of contact with BCIL, providing information on disability issues. BCIL I&R staff refer consumers to the appropriate people at BCIL. They can reach out to other agencies, for help with the concerns they may have. FIRST TIME VISITORS to our web site should read… Continue Reading Information and Referral (I&R) Services [...]
Information and Referral for Camps
Regional information and referral for camps. Call for customized listing of children’s summer camp referrals and for information about a full range of camp choices. Search from over 350 ACA, Accredited Camps in New England. The American Camp Association, New England enriches the lives of children and families through quality camp experiences. American Camp Association… Continue Reading Information and Referral for Camps [...]
Information and Referral for Lower Cost Care and Meds
NeedyMeds is a national non-profit. We are a comprehensive and reliable source of information on assistance programs available for people having difficulties paying for health care. The website (http://www.needymeds.org) is visited by 10,000-14,000 people each work day. Needymeds information is always free, easy to access, and updated regularly. Unlike similar sites, Needymeds requires no… Continue Reading Information and Referral for Lower Cost Care and Meds [...]
Information and Resources
Our mission is to be a peer guided supportive and safe place, for those living with Lyme Disease, and their care partners. We share ways and resources for living well. We are an all volunteer 501(c)(3) organization founded in October of 2013. All of our services are provided free of charge. Our income is… Continue Reading Information and Resources [...]
Information and Resources
TBI is the leading cause of death and disability in children and adults ages 1 to 44. Improves the outcome of patients worldwide by developing best practices, conducting research, and educating medical professionals and consumers. Brain Trauma Foundation (BTF) Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18,… Continue Reading Information and Resources [...]
Information and Resources
The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving the success of children and youth with disabilities and/or gifts and talents. CEC advocates for appropriate governmental policies, sets professional standards, provides professional development, and helps professionals obtain conditions and resources necessary for effective professional practice. CEC is known as THE source for information,… Continue Reading Information and Resources [...]
Information and Resources
Raises awareness, provides education and support to those affected by cyclic vomiting, abdominal migraine, and related disorders. Cyclic Vomiting Syndrome Association (CVSA) Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Milwaukee cvsa@cvsaonline.org 414-342-8980 414-342-7880 18689 Information and Resources Information/Referral,… Continue Reading Information and Resources [...]
Information and Resources
As a national technical assistance center, the National Center on Deaf-Blindness works with state deaf-blind projects. We work with other partners to improve educational results and quality of life for children who are deaf-blind and their families. NCDB and the state deaf-blind projects exist to help increase the knowledge and skills of teachers and… Continue Reading Information and Resources [...]
Information and Resources
A rare genetic disease patient advocacy organization centered on increasing rare disease awareness public and doctor education building community supporting research Global Genes Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Aliso Viego Katelyn Hobbs careaboutrare@globalgenes.org 949-248-7273 18764 Information… Continue Reading Information and Resources [...]
