Record last updated 2024/12/20 Comment on this info .Update this info
Contact Information
Cornelia de Lange Syndrome FoundationContact: Deirdre Summa, L.M.S.W., Family Service Manager
Email Address: familysupport@CdLSusa.org
Phone: 800-223-8355
Alternate Phone: 860-676-8166
Fax: 860-676-8255
View Support Groups Website
302 West Main Street Suite 100 Avon, CT 06001
Area Served: Out of State
Map Location Support Groups
Narrative
An organization dedicated to early and accurate diagnosis of Cornelia de Lange Syndrome Foundation. Helps families, friends and professionals caring for people with the syndrome. Publishes written materials and quarterly newsletter; toll-free line; biennial conference; and annual meetings for parents.
Service Types
- Disability Awareness
- Family Support
Program Type
- Communication
- Support Groups
Populations Served
- Cornelia de Lange Syndrome
- Developmental Disability
- Other See Narrative
Ages Served
- Birth to 3
- 3 - 4
- 5 - 8
- 9 - 13
- 14 - 18
- 19 - 22
- 23 – 59
Additional Information
- Fees: Free Service
