Individual and Family Support

Record last updated 2025/12/05 Comment on this info .Update this info

Contact Information

Turner Syndrome Society of the United States (TSSUS)
Contact: Deborah Rios, National Director of Member Services
Email Address: Info@turnersyndrome.org
Phone: 832-912-6006
Alternate Phone: 800-365-9944
Fax: 832-912-6446

11250 West Road #G Houston, TX 77065
Area Served: Out of State

Map Location Individual and Family Support

Narrative

A forum where those affected by Turner Syndrome can work together with medical professionals to better understand the condition.


​What is Turner Syndrome?

Turner Syndrome (TS) is a genetic condition in females. iOne of the two X chromosomes (sex chromosomes) is completely or partially missing. This chromosomal difference can lead to a range of physical, developmental, and medical challenges, including

  • short stature
  • delayed puberty
  • heart conditions
  • infertility

Service Types

  • Family Support
  • Socialization Activities

Program Type

  • Support Groups

Populations Served

  • Developmental Disability
  • Learning Disabilities
  • Turner Syndrome

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Additional Information

  • Fees: Free Service