VHL Family Alliance VHL Alliance

Record last updated 2018/10/24 Comment on this info .Update this info

Contact Information

VHL Alliance
Contact: Ilene Sussman, Executive Director
Email Address: info@vhl.org
Phone: (617) 277-5667
Alternate Phone: (800) 767-4845
Fax: (858) 712-8712

2001 Beacon Street, Suite 208 Boston, MA 02135
Area Served: Boston

Map Location VHL Family Alliance

Narrative

Offers medical information, patient information, and family support for individuals affected by Von Hippel-Lindau Disease.

Service Types

  • Family Support

Program Type

  • Information/Referral
  • Support Groups

Populations Served

  • Rare disorders/low incidence
  • von Hippel-Lindau Disease

Ages Served

  • Birth to 3
  • 3 - 4
  • 5 - 8
  • 9 - 13
  • 14 - 18
  • 19 - 22
  • 23 – 59
  • 60 +

Languages Spoken

  • French
  • Portuguese
  • Spanish

Additional Information

  • Fees: Free Service