Batten Disease Support and Research Association1175 Dublin Road, Columbus, OH 43215Phone: 800-448-4570 Record last updated on 07/23/2024 [...]
Ages Served: 3 - 4
3 or 4
Information and Support
Caregivers Action Network1150 Connecticut Avenue NW Suite 501, Washington, DC 20036Phone: 202-454-3970 Record last updated on 12/04/2025 [...]
Information and Support
Children's Craniofacial Association13140 Coit Road Suite 517, Dallas, TX 75240Phone: 214-570-9099 Alternate Phone: 800-535-3643 Record last updated on 12/04/2025 [...]
Information and Support
Chromosome 22 Central7108 Partinwood Drive, Fuquay-Varina, NC 27526Phone: 919-818-1346 Record last updated on 03/24/2025 [...]
Information and Support
Chromosome 9p Minus NetworkPO BOX 15484, Baton Rouge, LA 12486 Record last updated on 08/15/2025 [...]
Information and Support
Association of GastroIntestinal Motility Disorders140 Pleasant Street, Lexington , MA 02421Phone: 781-275-1300 Record last updated on 03/20/2025 [...]
Information and Support
WonderBaby.org PO Box 682, Watertown, MA 02471Phone: 617-923-1241 Record last updated on 03/24/2025 [...]
Information and Support
FRAXA Research Foundation10 Prince Place Suite 203, Newburyport, MA 01950Phone: 978-462-1866 Record last updated on 08/26/2024 [...]
Information and Support
Angelman Syndrome Foundation (ASF)3015 E. New York Street Suite A2 #285, Aurora, IL 60504Phone: 800-432-6435 Record last updated on 08/02/2024 [...]
Information and Support
Monomoy Community Services166 Depot Road, Chatham, MA 02633Phone: 508-945-1501 Alternate Phone: 508-945-1117 Record last updated on 01/14/2025 [...]
