American Syringomyelia and Chiari Alliance ProjectP.O. Box 1586, Longview, TX 75606Phone: 903-236-7079 Alternate Phone: 800-272-7282 Record last updated on 03/20/2025 [...]
Ages Served: 9 - 13
9 – 11: Grades 3-6
Information and Support
International 22q11.2 Foundation, Inc. PO Box 532, Matawan, NJ 07747Phone: 877-739-1849 Record last updated on 03/21/2025 [...]
Information and Support
Arthrogryposis Multiplex Congenita Support, Inc.P.O. Box 6291, Spartanburg, SC 29304 Record last updated on 07/15/2024 [...]
Information and Support
Batten Disease Support and Research Association1175 Dublin Road, Columbus, OH 43215Phone: 800-448-4570 Record last updated on 07/23/2024 [...]
Information and Support
Caregivers Action Network1150 Connecticut Avenue NW Suite 501, Washington, DC 20036Phone: 202-454-3970 Record last updated on 07/25/2024 [...]
Information and Support
Children's Craniofacial Association13140 Coit Road Suite 517, Dallas, TX 75240Phone: 214-570-9099 Alternate Phone: 800-535-3643 Record last updated on 08/02/2024 [...]
Information and Support
Chromosome 22 Central7108 Partinwood Drive, Fuquay-Varina, NC 27526Phone: 919-818-1346 Record last updated on 03/24/2025 [...]
Information and Support
Chromosome 9p Minus NetworkPO BOX 15484, Baton Rouge, LA 12486 Record last updated on 08/15/2025 [...]
Information and Support
Dandy-Walker Alliance10325 Kensington Parkway Suite 384, Kensington, MD 20895Phone: 877-326-3992 Record last updated on 12/18/2024 [...]
Information and Support
Foundation for Ichthyosis and Related Skin Types, Inc. (FIRST)PO Box 1067, Lansdale, PA 19446-0687Phone: 215-997-9400 Alternate Phone: 800-545-3286 Record last updated on 04/09/2025 [...]
