Support and Resources

United Leukodystrophy Foundation, Inc.224 North Second Street, Suite 2, DeKalb, IL 60115Phone: 815-748-3211 Alternate Phone: 800-728-5483 Record last updated on 10/08/2021 [...]

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Support Groups

Cornelia de Lange Syndrome Foundation302 West Main Street Suite 100, Avon, CT 06001Phone: 800-223-8355 Alternate Phone: 860-676-8166 Record last updated on 07/05/2022 [...]

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Support Groups

National Organization for Albinism and HypopigmentationEast Hampstead, NH 03826Phone: 603-887-2310 Alternate Phone: 800-473-2310 Record last updated on 06/15/2022 [...]

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