Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)2982 South Union Street , Rochester, NY 14624Phone: 585-594-4621 Record last updated on 07/25/2022 [...]
Populations Served: Genetic Disorders
Neuropsych Evaluations and Counseling Services
Boston Neuropsychological Services, LLC687 Highland Avenue, Needham, MA 02494Phone: 781-559-8444 x102 Record last updated on 09/11/2024 [...]
New England Disabled Sports
Loon Mountain39 Loon Brook Road, Lincoln, NH 03251Phone: 603-745-9333 Alternate Phone: 603-745-2270 Record last updated on 08/05/2024 [...]
New England Newborn Screening Program
UMass Chan Medical School 377 Plantation Street Biotech 4 2nd Floor, Worcester, MA 01605Phone: 774-455-4600 Record last updated on 08/27/2024 [...]
New England Yachad Programs
Yachad384 Harvard Street, Brookline, MA 02446Phone: 617-209-6799 Record last updated on 01/25/2022 [...]
Office of Rare Diseases Research
Genetic and Rare Diseases Information CenterNational Institute of Health 6701 Democracy Boulevard Suite 1001 MSC 4874, Bethesda, MD 20892Phone: 301-402-4336 Alternate Phone: 888-205-2311 Record last updated on 07/29/2024 [...]
Outpatient Neurology Program
Boston Children's Hospital300 Longwood Avenue, Boston, MA 02115Phone: 617-355-6388 Record last updated on 05/03/2024 [...]
Pedi Pals – Massachusetts Department of Public Health Pediatric Palliative Care Network
Notre Dame Health Care555 Plantation Street , Worcester, MA 01605Phone: 508-852-5505 Record last updated on 10/29/2021 [...]
Pediatric Palliative Care – Franklin County
Pioneer Valley Hospice & Palliative Care329 Conway Street Suite 2, Greenfield, MA 01301Phone: 413-774-2400 Record last updated on 07/09/2024 [...]
Pediatric Palliative Care Program – Merrimack Valley
Tufts Medicine Care at Home360 Merrimack Street Building 9, Lawrence, MA 01843Phone: 800-933-5593 Alternate Phone: 978-552-4444 Record last updated on 06/20/2023 [...]
