Foundation for Ichthyosis and Related Skin Types, Inc. (FIRST)PO Box 1067, Lansdale, PA 19446-0687Phone: 215-997-9400 Alternate Phone: 800-545-3286 Record last updated on 04/09/2025 [...]
Populations Served: Genetic Disorders
Information and Support – New England Chapter
Facioscapulohumeral Muscular Dystrophy Society (FSH)75 North Main Street Suite 1073, Randolph, MA 02420 Phone: 781-301-6060 Record last updated on 04/09/2025 [...]
Intensive Foster Care (IFC)
Communities for People418 Commonwealth Avenue, Boston, MA 02215Phone: 617-267-1031 Alternate Phone: 877-852-1271 Record last updated on 01/13/2025 [...]
Joann Lebherz
Coastal Education Advocacy 2 SARAH LAWRENCE RD, Sandwich , MA 02537Phone: 774-205-4278 Record last updated on 04/29/2026 [...]
Legal Services
Atticus Law100 State Street, Boston, MA Phone: 800-674-8141 Record last updated on 05/07/2026 [...]
Lettercase – Prenatal and Postnatal Resources
University of Kentucky’s Human Development Institute100 Sturgill Development Building, Lexington, KY 40506Phone: 859-323-1064 Record last updated on 08/13/2024 [...]
Mary-Frances Garber
Listening, Reflecting, HealingNeedham, MA Phone: 781-366-5300 Record last updated on 04/09/2026 [...]
Massachusetts Chapter
March of Dimes112 Turnpike Road Suite 300, Westborough, MA 01581-2850Phone: 508-366-9066 Alternate Phone: 800-458-0039 Record last updated on 12/05/2025 [...]
Massachusetts Chapter SOFT
Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)18 Richard Road, Lexington, MA 02421Phone: 781-862-8273 Record last updated on 01/26/2026 [...]
Massachusetts Community Group
National Marfan Founcation22 Manhasset Avenue, Port Washington, NY 02152Phone: 617-846-4975 Record last updated on 03/13/2025 [...]
