Batten Disease Support and Research Association1175 Dublin Road, Columbus, OH 43215Phone: 800-448-4570 Record last updated on 07/23/2024 [...]
Program Type: Advocacy
Information and Support
Caregivers Action Network1150 Connecticut Avenue NW Suite 501, Washington, DC 20036Phone: 202-454-3970 Record last updated on 07/25/2024 [...]
Information and Support
Children's Craniofacial Association13140 Coit Road Suite 517, Dallas, TX 75240Phone: 214-570-9099 Alternate Phone: 800-535-3643 Record last updated on 08/02/2024 [...]
Information and Support
Chromosome 22 Central7108 Partinwood Drive, Fuquay-Varina, NC 27526Phone: 919-818-1346 Record last updated on 03/24/2025 [...]
Information and Support
Chromosome 9p Minus NetworkPO BOX 15484, Baton Rouge, LA 12486 Record last updated on 04/30/2024 [...]
Information and Support
Foundation for Ichthyosis and Related Skin Types, Inc. (FIRST)PO Box 1067, Lansdale, PA 19446-0687Phone: 215-997-9400 Alternate Phone: 800-545-3286 Record last updated on 04/09/2025 [...]
Information and Support
FACES:The National Craniofacial AssociationPO Box 11082, Chattanooga, TN 37401Phone: 423-266-1632 Alternate Phone: 800-332-2373 Record last updated on 06/03/2024 [...]
Information and Support
Joubert Syndrome & Related Disorders Foundation (JSRDF)9 Dorenfeld Court, Petaluma, CA 94952 Record last updated on 12/17/2024 [...]
Information and Support
National Foundation for Ectodermal Dysplasias6 Executive Drive Suite 2, Fairview Heights, IL 62208Phone: 618-566-2020 Record last updated on 02/12/2025 [...]
Information and Support
National Military Family Association3601 Eisenhower Avenue Suite 425, Alexandria, VA 22304Phone: 703-931-6632 Record last updated on 08/02/2024 [...]
