Support and Resources

A MDF toolkit, support groups, family connections, webinars, and conferences to educate affected individuals, the medical community, and community at large. Myotonic Dystrophy Foundation Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + San Francisco info@myotonic.org 415-800-7777 866-968-6642 18898 Support… Continue Reading Support and Resources [...]

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Support and Resources

Provides patients and family with information about diseases and identifying resources at the same time. We promote education and research about Leukodystrophy. United Leukodystrophy Foundation, Inc. Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59 DeKalb Chris Rice office@ulf.org 815-748-0844 815-748-3211 800-728-5483… Continue Reading Support and Resources [...]

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Support for Families with Multiple Birth Children

The Multiples of America aka NOMOTC is a 501(c)(3) non-profit organization dedicated to supporting families of multiple birth children. We offer education, research, and networking. In partnering with local support groups, health care providers, researchers, and educators, we have the highest standards of integrity, respect and professionalism. We work to aid parents of multiples… Continue Reading Support for Families with Multiple Birth Children [...]

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Support for Mental Health, Drugs or Alcohol

Get treatment referral and information about mental health and drug or alcohol use disorders, prevention, and recovery. Substance Abuse and Mental Health Information Center (SAMHSA) 14 – 18, 19 – 22, 23 – 59, 60 + Rockville Anita Everett, M.D., DFAPA samhsainfo@samhsa.hhs.gov 240-221-4295 877-726-4727 18959 Support for Mental Health, Drugs or Alcohol Advocacy, Information/Referral,… Continue Reading Support for Mental Health, Drugs or Alcohol [...]

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Support for People with Microtia or Atresia

Nonprofit organization for children & adults born with Microtia & Aural Atresia, Craniofacial Microsomia & Goldenhar Syndrome. Offers online support, advocacy, education, events, scholarships & donates bone conduction hearing. Has Federal legislation in place known as Ally’s Act for hearing devices and champions genetics research. Ear Community Birth to 3, 3 – 4, 5… Continue Reading Support for People with Microtia or Atresia [...]

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Support Groups

Support groups include,coping with cancer, head trauma, caring for the caregiver, breastfeeding, Parkinson’s Disease and Multiple Sclerosis. Check schedules for additions or changes. Wheelchair Ramps, Elevators, Accessible Parking, Accessible Restrooms, Accessible Public Transportation Milford Regional Medical Center 19 – 22, 23 – 59 Milford Donna Boynton DBoynton@milreg.org 508-422-2206 4618 Support Groups Support Groups 5)… Continue Reading Support Groups [...]

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Support Groups

Offers Parent & Family Support Network and ongoing statewide phone/e-mail network. Contact Foundation for current monthly gatherings for parents and family members. Wheelchair Ramps, Elevators, Accessible Parking, Accessible Restrooms, Near Public Transportation, Medical Needs Epilepsy Foundation of New England Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18,… Continue Reading Support Groups [...]

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