Offers informational activities and works to increase awareness of the congenital birth defect Dandy-Walker. One in 10,000 children is born with Dandy-Walker Malformation, a congenital brain malformation involving the cerebellum and the fluid-filled spaces around it. Dandy-Walker is often associated with other conditions such as hydrocephalus, seizures, mobility issues, developmental delays, other central nervous… Continue Reading Information and Support [...]
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Information and Support
Offers information and medical research. We have a national family conference, on ichthyosis and related disorders. Also offers financial assistance. Foundation for Ichthyosis and Related Skin Types, Inc. (FIRST) Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Lansdale Lisa… Continue Reading Information and Support [...]
Information and Support
FACES assists families with travel to major medical centers. Specialized craniofacial teams provide the safest and most advanced treatment for building a face and skull. FACES, along with Face Equality International, of which FACES is a founding member, provides information and education to increase public understanding of craniofacial differences. FACES provides free and unbiased… Continue Reading Information and Support [...]
Information and Support
Local supports and information shared by parents of children with Down Syndrome. Has support group meetings organized at least three times a year. We offer all ages play groups for toddlers and school age children. We also have social activities for teen members. The DSRGWM offers scholarships to its members on a first come/need… Continue Reading Information and Support [...]
Information and Support
Information and support for patients diagnosed with acoustic neuroma and other benign tumors of the cranial nerves. Acoustic Neuroma Association Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Cumming Melissa Baumbick info@anausa.org 770-205-0239 770-205-8211 877-200-8211 4396 Information and Support… Continue Reading Information and Support [...]
Information and Support
Provides educational and management information about diabetes. We have referrals and information about programs for people with diabetes. American Diabetes Association Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Alexandria askada@diabetes.org 800-342-2383 22463 Information and Support Advocacy, Information/Referral,… Continue Reading Information and Support [...]
Information and Support
Connects patients, families, friends and caregivers for support, education, advocacy, outreach, and research. We have a variety of resources and programs for gastrointestinal motility disorders. Association of GastroIntestinal Motility Disorders Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18, 19 – 22, 23 – 59, 60 + Lexington… Continue Reading Information and Support [...]
Information and Support
WonderBaby.org works to help parents of young children with visual impairments as well as children with multiple disabilities. You’ll find a database of articles written by parents who want to share with others what they’ve learned about playing with and teaching a blind child. We have links to meaningful resources and ways to connect with… Continue Reading Information and Support [...]
Information and Support
Dedicated to improving the lives of children with craniofacial conditions, including cleft lip, cleft palate, and other head and facial differences. Foundation for Faces of Children (FFC) Birth to 3, 3 – 4, 5 – 8, 9 – 13, 14 – 18 Brookline Monir Sakha info@facesofchildren.org 617-355-8299 18746 Information and Support Advocacy, Information/Referral, Support… Continue Reading Information and Support [...]
Information and Support
Education, support, information, coaching, community, and advocacy for people with Asperger/autism/neurodiverse profiles of all ages and their families. We have support groups, social groups, conferences, webinars and coaching. Free and fee for service programs and services. Elevators, Accessible Restrooms, Near Public Transportation Association for Autism and Neurodiversity (AANE) Birth to 3, 3 – 4,… Continue Reading Information and Support [...]
