International 22q11.2 Foundation, Inc. PO Box 532, Matawan, NJ 07747Phone: 877-739-1849 Record last updated on 03/21/2025 [...]
Areas Served: national
Information and Support
Anxiety and Depression Association of America (ADAA)8701 Georgia Avenue Suite 412, Silver Spring, MD 20910Phone: 240-485-1001 Record last updated on 03/04/2025 [...]
Information and Support
Batten Disease Support and Research Association1175 Dublin Road, Columbus, OH 43215Phone: 800-448-4570 Record last updated on 07/23/2024 [...]
Information and Support
Caregivers Action Network1150 Connecticut Avenue NW Suite 501, Washington, DC 20036Phone: 202-454-3970 Record last updated on 07/25/2024 [...]
Information and Support
Children's Craniofacial Association13140 Coit Road Suite 517, Dallas, TX 75240Phone: 214-570-9099 Alternate Phone: 800-535-3643 Record last updated on 08/02/2024 [...]
Information and Support
Chromosome 9p Minus NetworkPO BOX 15484, Baton Rouge, LA 12486 Record last updated on 04/30/2024 [...]
Information and Support
Dandy-Walker Alliance10325 Kensington Parkway Suite 384, Kensington, MD 20895Phone: 877-326-3992 Record last updated on 12/18/2024 [...]
Information and Support
Dravet Syndrome Foundation, Inc.PO Box 3026, Cherry Hill, NJ 08034Phone: 203-392-1955 Record last updated on 07/02/2024 [...]
Information and Support
FACES:The National Craniofacial AssociationPO Box 11082, Chattanooga, TN 37401Phone: 423-266-1632 Alternate Phone: 800-332-2373 Record last updated on 06/03/2024 [...]
Information and Support
Joubert Syndrome & Related Disorders Foundation (JSRDF)9 Dorenfeld Court, Petaluma, CA 94952 Record last updated on 12/17/2024 [...]
